There is one more symptom that I would like to mention at this time. Please be aware this is not an essay issue to discuss, so proceed with caution!!
Video 6: Symptoms (Repeat)
Please note: there are two copies of a “Symptoms” video. The reason for this is that I simply forgot I had done the first one (even though I have a written running list). I have left both of these up (plus an addendum) to show the kinds of issues that patients with PTC deal with on a regular basis. It is also obvious the difference in my attitude (even though I am trying very hard), my demeanor, behavior, etc. I am barely coping in this video…
This video details some of the known and typical symptoms of Pseudotumor Cerebri (PTC)/ Benign Intracranial Hypertension (BIH)/ Idiopathic Intracranial Hypertension (IIH). I also discuss my experience with these symptoms, and others not as ‘typical’, throughout my journey thus far, since 1992, with this condition.
Video 6: Symptoms of Pseudotumor Cerebri (PTC)
This video details some of the known and typical symptoms of Pseudotumor Cerebri (PTC)/ Benign Intracranial Hypertension (BIH)/ Idiopathic Intracranial Hypertension (IIH). I also discuss my experience with these symptoms, and others not as ‘typical’, throughout my journey thus far, since 1992, with this condition.
Please note: there are two copies of a “Symptoms” video. The reason for this is that I simply forgot I had done the first one. I have left both of these up (plus the addendum) to show the kinds of issues that patients with PTC deal with on a regular basis. It is also obvious the difference in my attitude (even though I am trying very hard), my demeanor, behavior, etc. I am barely coping in this video…
Video 5: The aftermath of the lumbar puncture…
Post lumbar puncture/spinal tap effects. A difficult recovery due to a leak. I learned what a ‘low pressure headache’ was. This led to the period between October of 1992 and February of the following year. I was on Diamox during this time, which unfortunately did not help me. Hence, I ended up having to have my first procedure in February.
Next video discusses the symptoms that I was experiencing during this time and that are so typical of this condition. Followed by a video of my first of many surgical procedures: left eye sheath fenestration.
Video 4: First visit to my neurologist
First visit to a neurologist at Columbia Presbyterian Hospital (now Presbyterian New York Hospital). My journey continues as I first hear the real and actual diagnosis of Pseudotumor Cerebri (also known as Benign Intracranial Hypertension or/and Idiopathic Intracranial Hypertension). It becomes real!
Please be aware that during this video I discuss a lumbar puncture/spinal tap procedure (not in detail).
Video 3: First neuro-ophthalmologist Visit
This is my third video on this journey and life with Pseudotumor Cerebri. During this video I describe my first visit to the doctor who is to become the center and crucial neuro-ophthalmologist at Columbia Presbyterian Hospital (now known as Presbyterian New York Hospital) for over twenty years of my life. Now retired, I owe him much!
Video 2: First Ophthalmologist Visit
This is the second video, introducing my journey into the diagnosis, treatment, and living with Pseudotumor Cerebri. In this video I describe an eye check-up appointment to the ophthalmologist that recognized the initial signs and symptoms; he is the one who led me to seek diagnosis, treatment, and ultimately, help in 1992.
In honor of…
Faith, Hope, & Love
“This photograph is in honor of those who are suffering in the world at this time.”
Thank you Charo Gosp, photographer and dear friend.