Pseudotumor Cerebri Website: Chronic Pain Introductory Paragraph

The birth of this website is deep-rooted in my condition, Pseudotumor Cerebri, and my long struggle with the signs and symptoms, and failed treatments, of an immunological-neurological dis-ease, and what it means to live with one. My vision here is to generate a platform for open discussion, research/investigation, think tanks, and dispersal of information; a knowledge base and experiential foundation, and to continue an exploration of pain manifested over time, on the path to physical wellness and liberation.

            Three websites are linked here, for your convenience: www.pseudotumor.life, about my experience with the medical side of this condition; www.onemomentintime.com, about dealing with the chronic side of physical, psychological, and emotional pain. This website covers and array of subjects, offers suggestions, resources, & links. Lastly, it also serves as a blog for thoughts of a journey through an insidious chronic daily path; and  www.unsusurro.com (same as previous, in its Spanish language version). The aim is to cover all aspects of chronic pain: the modern Asclepian [after Asclepius, first doctor demi-god in Greek mythology*] medical system, as well as Hygeian [after the healing Goddess Hyeia].

* Note – from Wikipedia, https://en.wikipedia.org/wiki/Asclepeion  4-9-2020

Video 9: Surgery 3

This video discusses the Pseudotumor Cerebri neurosurgical option known as Internal Cranial Expansion or ICE. (Please note that in no way I am suggesting, enforcing, nor giving medical advice. This video only relates my experience and knowledge to this date on this surgery.)

For a PDF of the article “Internal cranial expansion surgery for the treatment of refractory idiopathic intracranial hypertension” please click here, or see my Resources Section. (Please be aware that this PDF article contains photographs that may be of a sensitive nature.)

Video 8: Surgeries 2

This is the second video of three about the surgery types used as possible treatments for Pseudotumor Cerebri, in my direct experience.