Since the beginning of this YouTube channel, I have wished to trace and shared my life with IIH. What I never realized is that I was only ‘surviving’. For the first time this past year (& thanks to the GSR Technique) I have begun to live life instead of merely survive. Come take this journey with me and live!
The material on this YouTube channel and on my websites is for the purpose of entertainment and is not ever intended to be used as medical advice or to be taken instead of the advice of a medical professional. Always listen to your doctor or licensed practitioner.
After yet another Lumbar Puncture procedure for IIH, results show that the VA shunt placed during the May surgery is not functioning correctly and further procedures are required. These news have been difficult to take. Please join me in a discussion of the present situation.
After a hiatus, I have decided to share with you not only the joy of ‘getting better’ but also the bumps on the road and the fall backs. Here I am again to give anecdotes and stories that may make you laugh, think, or perhaps even shed a tear. As always, many hugs to all of you!
My coughing attacks continue and getting worse. This saga is becoming a real issue and one that was completely unexpected and leaving specialists speechless. I am truly being tested physically and mentally. An interesting phase in my life and yet another outcome of a VA shunt that was completely surprising to me.
After my IIH VA Shunt surgery headaches and dizziness have returned. With a nicked nerve in the throat seriously damaging my vocal cords and impeding me from swallowing properly, I am quite frustrated. Yet, my old headaches returned, waking up in such pain again has really done me in. This chronic pain of pseudotumor cerebri coming back, on top of everything else is not something I ever expected.
After my second Covid Pfizer vaccine I knew that I was experiencing lots more headaches than usual. Here is my experience. This is the beginning of what I was hoping would be an open discussion.
After a long time of resisting surgery, my body is giving strong indications (future video) that I need to go through yet another operation. I ask for all your support, positive vibes, and prayers (if you are so inclined) to wish me the best in this endeavor.
My plan is, with my hubby’s tech help, to give you as many updates as I possibly can. Please be aware that for the hospital’s privacy I will not discuss any names. Also, I will include a black screen at the beginning of any video that might contain possible sensitive material (bandages, etc.) I will not be videotaped with anything that is past a certain level of décor. This would simply be unfair to both of us, my privacy and your taste.
Again, thank you very much for all your support. I so appreciate your kindness, the love you send me, and all the support through all this years. Many kisses always!
When doctors tell me that we have reached a dead-end road with pain medication for my headaches the next step proposed is a left side of my body VP shunt procedure with a possible septal fenestration. I am not too keen on this idea due to its risks. My question to you is: what do you think? Would you do this surgery if you were in my shoes?
As you can see, especially if you have seen some of my past videos, I am a bit lethargic. The pain is quite severe at this time. I have put on my best face but it is truly not easy.
I began to experience mild symptom at first, such as: throat ache, diarrhea, and an overall flu-like sensation. These progressed over the weekend into body chills and aches, very severe and acute headaches (which are my weak spot having Pseudotumor Cerebri), and I went from no fever to a low-grade fever.
Having so many medical issues I am not one to panic. But I am also very aware that I need to safeguard those around me. Hence, I called my doctor who suggested, due to my symptomology, a COVID-19 test. Now mind you, I live under very strict precautions as I am high-risk. So, how would I have ever contracted a virus, any virus/bacteria? The question still remains. Curiously, and even though I was sure I did not have this particular virus, the wait for the results was my new understanding of the possible horrific outcomes and ramifications I might be facing. Is living in this ‘fear’ the new ‘normal’, I wondered?
Yet, fortunately, my test came back negative. Yippee! And also, yet, there was also a lack of care for whatever ailment I was dealing with, which was a another new outcome to me.
I share this video, and this experience, when I was still feeling quite ill, especially with a bad headache, wishing to get off camera and quickly as possible; but knowing that maybe this might help someone out there. May all your results be negative, and may you continue to search for health in this seemingly void of answers. Thank you for listening!
