After yet another Lumbar Puncture procedure for IIH, results show that the VA shunt placed during the May surgery is not functioning correctly and further procedures are required. These news have been difficult to take. Please join me in a discussion of the present situation.
The Return
After a hiatus, I have decided to share with you not only the joy of ‘getting better’ but also the bumps on the road and the fall backs. Here I am again to give anecdotes and stories that may make you laugh, think, or perhaps even shed a tear. As always, many hugs to all of you!
IIH: Cough
My coughing attacks continue and getting worse. This saga is becoming a real issue and one that was completely unexpected and leaving specialists speechless. I am truly being tested physically and mentally. An interesting phase in my life and yet another outcome of a VA shunt that was completely surprising to me.
22 Headache Update:
After my second Covid Pfizer vaccine I knew that I was experiencing lots more headaches than usual. Here is my experience. This is the beginning of what I was hoping would be an open discussion.
Welcome to my path to another surgery!
After a long time of resisting surgery, my body is giving strong indications (future video) that I need to go through yet another operation. I ask for all your support, positive vibes, and prayers (if you are so inclined) to wish me the best in this endeavor.
My plan is, with my hubby’s tech help, to give you as many updates as I possibly can. Please be aware that for the hospital’s privacy I will not discuss any names. Also, I will include a black screen at the beginning of any video that might contain possible sensitive material (bandages, etc.) I will not be videotaped with anything that is past a certain level of décor. This would simply be unfair to both of us, my privacy and your taste.
Again, thank you very much for all your support. I so appreciate your kindness, the love you send me, and all the support through all this years. Many kisses always!
21: Would you have this surgery for your headaches?
When doctors tell me that we have reached a dead-end road with pain medication for my headaches the next step proposed is a left side of my body VP shunt procedure with a possible septal fenestration. I am not too keen on this idea due to its risks. My question to you is: what do you think? Would you do this surgery if you were in my shoes?
As you can see, especially if you have seen some of my past videos, I am a bit lethargic. The pain is quite severe at this time. I have put on my best face but it is truly not easy.
Video 9: Surgery 3
This video discusses the Pseudotumor Cerebri neurosurgical option known as Internal Cranial Expansion or ICE. (Please note that in no way I am suggesting, enforcing, nor giving medical advice. This video only relates my experience and knowledge to this date on this surgery.)
For a PDF of the article “Internal cranial expansion surgery for the treatment of refractory idiopathic intracranial hypertension” please click here, or see my Resources Section. (Please be aware that this PDF article contains photographs that may be of a sensitive nature.)
Video 8: Surgeries 2
This is the second video of three about the surgery types used as possible treatments for Pseudotumor Cerebri, in my direct experience.